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Product details

File Size: 408 KB

Print Length: 76 pages

Publisher: CreateSpace Independent Publishing Platform (November 7, 2012)

Publication Date: November 7, 2012

Sold by: Amazon Digital Services LLC

Language: English

ASIN: B00A3ZABL0

Text-to-Speech:

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Amazon Best Sellers Rank:

#289,383 Paid in Kindle Store (See Top 100 Paid in Kindle Store)

I cannot say enough good things about this book. I loved it, my girls loved it, we all just loved it. As a mom of two children with Cystic Fibrosis, I found this book to be uplifting and positive. Claire's message is such a good one. She not only tells her story, she tells everyone's story who lives with this disease in the most positive way possible. It's my opinion that everyone living with a chronic illness, not just CF, as well as their caregivers would benefit from her words of wisdom. I would even go so far as to say that EVERYONE in general should live this way, which is in the present. I'm thinking of buying a few extra copies to give to my girl's teachers because she gives the reader such a clear visual of what a CF kid has to go through every day just to stay as healthy as possible. Yes, it's a serious disease but Claire gives us all hope that we don't have to sit around waiting for the next infection. Such a positive message from such a special girl. I give it a million thumbs up. :)

This is a story told with extraordinary honesty, candor, and detail by Claire Wineland about many of her most significant experiences with Cystic Fibrosis. I do not remember how I came across her website, but I was immediately captivated by her brilliant personality upon viewing her vlogs. This is a very intelligent girl who is very good at being a teenager. She has a delightfully off-beat sense of humor and outgoing personality that has often made me forget that she has a progressive disease. At the same time, she must be close to attaining self-actualization. Her self-awareness is almost unheard-of for a girl of her young, vulnerable age. It is very moving how open she is about her struggles and even about personal weaknesses and flaws. It is evident that she is speaking from her heart in order to share her story not to make herself look good, but to share a vivid and transparent picture of her experiences for the benefit and personal growth of both sick and "healthy" people alike.She has gained lots of national and international attention through not just her website and vlog, but also through actual television and radio features and interviews. Despite this, she has remained a "normal" teenager and keeps extraordinarily busy with many things, not the least of which is Claire's Place Foundation, the goal of which is to educate people suffering from her disease, and to help CF families with funding for a variety of necessities. In this small book, she goes into a dense and enlightening amount of detail about her experience launching her Foundation, her coma experience (she had a 1% chance of survival), as well as her inner emotional experience, which was rocky at times, as to be expected. In fact, Claire shares much more detail in the book than is possible on her vlogs. One comes away from her book much more enlightened about her experiences and how these have helped her to grow as a person. In her latest vlog update, she makes it clear that the writing in is book is from her perspective (in other words, it is HER writing). After reading her book, this is obvious to me because I can detect her "voice" after having viewed so many of her vlogs. Her friend merely helped her to be more concise in her writing.To conclude, Claire beautifully expresses her life experience in this book. I have found myself rereading certain parts of this book for inspiration, and each time I do so, I am stunned by the depth of her thoughts and feelings. Among many things, by reading this book one can tell she is a true philosopher. In this world, this is something quite beautiful to achieve for someone so young.

I have been following Claire for about 3 years and grow more and more amazed at her ability to deal with her Cystic Fibrosis. I know nothing of Chynna but if, at eleven, she can write like this, then I hope she has a truly wonderful future. A book that should bring in money for research into Cystic Fibrosis, which must have a cure and soon.

There are no words that describe how wonderful this book was. If you or someone you know has CF, you should read this book. It is an amazing story about a young woman with so much courage to not only fight this disease but help others who also have it.

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I can truly relate to all her stories. I know for a fact that she has endured all the treatments.

I knew Claire only slightly. As President of the National Special Needs Network she and I had communicated on occasion. She was a remarkable young woman with a fund of wisdom far beyond her years. She was also funny and sassy and spunky, and in 21 years accomplished far more than many people do who are fortunate to live full lifetimes. I strongly recommend this book, and I encourage you to watch Claire's amazing You Tube videos, full of life lessons. Claire's life was full, she experienced every moment of it to the maximum, and she has left a wonderful legacy behind her. She will inspire you to really live.

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